This is my niece Josephine.
She was born on October 22.
Shortly after she was born she was diagnosed with Trisomy 18, or Edward's Syndrome.
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She will not live long-trisomy 18 is genetic disorder where there is extra material from the
18th chromosome (like extra material from the 21st chromosome causes down syndrome.) About 95% die in utero. Of liveborn infants, only 50% live to 2 months,
and only 5-10% will survive their first year of life.
Josephine has had many blue spells. Because of her condition she will stop breathing.
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It seems that anytime her little body is under stress she has difficulty breathing.
My brother asked me to make her a burial dress after the first episode.
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This was a wonderful experience. I felt so honored to be apart of Josephine’s life,
to sew a dress that instead of being her christening gown would be her burial gown.